Let’s hide this, because I want to feel more freedom.
Jun 7 (Sun): Airplane 10a; rest
Jun 8 (Mon): Work 8:30a – 5:30p; Go to uncle’s after work
Sunday: Said goodbye to my grandma. She was the most lucid she’s been the whole time I’ve seen her. She even ate breakfast (puree, fed to her by spoon). I couldn’t bring myself to say some of the things I was going to say to her, because she was very alert as I said goodbye. I kind of wish I hadn’t started crying while hugging her. I’m not sure if she knew I thought it might be our final goodbye or if she thought I was just sad about having to leave in general. I told her I love her and she told me she loves me.
I feel somewhat responsible for the following downtrodden mood of hers. My mom thinks maybe she got a stomach ache again and that’s what caused it, but I can’t help but feel that her sensing my sadness was also responsible. But apparently right after I left, she was saying things like she didn’t want to be a burden on anyone anymore, and stuff. But I thought, at least she is still saying sentences, maybe that’s a good sign.
But then she didn’t eat or drink really the rest of the day.
Meanwhile, I traveled back to these dual cities I am now calling home-ish. (My uncle’s city and Peter’s city.) I want to turn right back around and return to my grandma’s side. I already told them I would if they thought I’d be of any use. I would fly out this instant. She will be paying nurses and there is also hospice and so my grandma will have someone with her around the clock. But surely she would be even happier to have a familiar face by her side for a lot of that time. Oh, I am accidentally fast-forwarding this log — there is another development I haven’t written about yet, so look for her new home information farther down this log.
I was in airports most of the day due to flight mess-ups (well, like not being able to locate the co-pilot for several hours). Meanwhile, Peter had actually shown up at my arriving airport and was waiting for me! Good thing he brought a looong book because it was hours and hours before I arrived. We went to his apartment and I unpacked and told him about my grandma. It was nice to see him and he said it was nice that I’m back again and frankly I can’t think of anything that smells better than him. But I’m very confused and my heart is not here right now. I might go back to my grandma for a while; I haven’t decided.
Monday: Peter and I got up early and I made it to work by 8:30a. Crazy. I packed a PBJ to-go for breakfast. But ended up eating some granola for breakfast and the PBJ for lunch and I’m pretty hungry and weak-feeling now, but I’m not doing anything about it. I’ll leave work shortly and head to my aunt and uncle’s house. Maybe there will be food; if not, I have a frozen TV dinner in the downstairs freezer.
I caught up on things here at work. Except we did receive a bill for a service I personally cancelled six months ago, and they refused to acknowledged it because I did it over the phone and have no paper trail. Bloody hell. I’ll deal with it more tomorrow. I have a call in to a company that might be able to back my story.
Anyway, so work has gone well today. I was busy and productive for quite a while. I even called my health insurance again and am told that my termination letter is on its snail-mail way to me, and my case is currently in “appeals” and I should know more within a week or 2. Here’s hoping.
I also made a passport application appointment, finally, and also sent for another record of my birth certificate, because I am so anxious at the thought of having to mail in my only original birth certificate for this passport application.
SO the development with my grandma is that she was refusing food and liquid again today. Hospice was consulted again and it was decided to move my grandma to my aunt + uncle’s house there. I am very glad of it. She was SO unhappy at the new place.
See, she had lived in a certain assisted living facility for YEARS. She had friends and all of her familiar things around her there. But after 7 hospitalizations, including the previous SEVERE UTI and a possible mini-stroke (they’re still not sure), she was deemed unable to remain there, because she needed a more intense level of care than could be provided at that place.
So after her UTI was cleared up (the hospital said the UTI was so severe, they were surprised it hadn’t killed her), she was moved to a new home, one with a special unit for dementia patients and would be able to care for her. Before she could move into her new room, they had her for a short while in a different unit of the building, a rehab center, where she was supposed to regain enough strength to help her transfer safely to her chair and toilet, and feed herself, etc.
However, she’s been unhappy at this place. She begs to go home and see her friends but she can’t. Her rehab room looks and smells like a hospital room. The staff is very busy and not really that personable with her. Even in the few days I was there, she got weaker and weaker and more and more remained in a brain fog and asleep, and lost the ability to chew and feed herself, and forgets things like swallowing.
Anyway, so today they decided to move her to my aunt and uncle’s place there. They work and are also unqualified for her level of care, but they have hired nurses and hospice and altogether, my grandma will have round the clock care. Hospice currently guesses she has another week to a month before she dies.
Maybe she will be so happy to be back in a familiar, homey, loving environment that she will remember the will to live and will start to eat and drink again. And if not, she will spend her final days in the most familiar, homey, loving environment possible, and I don’t think anyone could ask for more than that.
I’m going to sign up for classes that begin in August here, but I am very seriously considering spending some time between now and then with her there.
A line so clean,
you can touch it.
Run your hand into the clouds,
with water droplets glistening.
The blue is hypnotic.
You can stare at the line for the rest of time.
Everything is okay now.
Now is the time.
When time lasts forever.
How can I stay
Leave you behind.
And a smile.
You’d be fine by my side
But I’m alone here.
in my heart.
With wings to hold me
And air to keep me here.
With silver streams of light
Warming my eyes
Reflecting streaks on the window.
Jun 2 (Tue): (No therapy); Work 11-00a – 5:30p
Jun 3 (Wed): Work 9:00a – 1:30p; Airplane 4p
Thank you for your support, everybody. For those of you who wrote me on my blog, and those of you who contacted me privately, thank you. I was really freaking out about having lost my insurance.
The rest of Monday’s log: By the evening, I had scrapped my then-plans and didn’t go to my uncle’s to get my stuff for packing. I considered: I was feeling so unwell mentally and not able to think, there was no way I was going to be able to pack. Nor would I be able to make myself food. So I went to Peter’s place instead, and we had leftovers there that he heated up for me. I felt so much better after I ate.
But I didn’t sleep. My stomach hurt too much.
Tuesday: Getting out of bed was SOOOOOOOOOOOOOOOOOOO HARD. I craved sleep. I was so tired. Then the cramping hit. Near the end of my shower, I had to curl over for a minute because the cramping hurt too much to stand up straight. And my whole body was super sensitive. The slightest touch hurt me. But I have a fear of people thinking I’m a hypochondriac so although I mentioned to Peter that I was feeling like I had caught a flu, I went to work anyway.
Yep! Diarrhea! ALLLLLLLL day.
OmfG was I exhausted by the end of the day. I was given an important task late in the afternoon so I couldn’t leave work early. I did leave before finishing, however. I went to my uncle’s house and talked with him for a little while. I hadn’t talked with him in a long time again. Then I gathered the few items I needed from there, and talked with him again. But this time he was angry about his cellphone touch screen not working and threw it on the desk once out of anger and I had some memories and could see it flying across the room and whatnot so I stayed back and let him know I was leaving. I told him to come in to work today so I could see him again before I leave to visit his mom.
Anyway, then I went to Peter’s and it was very late by then. I packed and talked with my mom over the phone, who told me that my grandma has a diagnosis of acute kidney injury. That is different from kidney failure, although I don’t know how. I guess it is not good, whatever it is.
I took 1 mg of clonazepam and some pain medicine and I SLEPT!!!!!!!!!!! YAAAAYYYY!! Sleep!
Wednesday: Somehow crawled out of bed with Peter. Showered. I’m all packed. Grabbed some breakfast-to-go because I needed to hit work in time to finish up these reports. I’m feeling fine emotionally, and haven’t had any GI issues yet — that could be because all I’ve eaten since yesterday morning is PBJ’s. But I’m drinking electrolyte fluids and whatnot. Got to finish up some work stuff and then head to the airport. Health insurance issues will have to wait for me. Signing up for classes will have to wait for me (I got accepted at least — have a student email address already and everything!).
UPDATE: Okay! Here we goooo! (Shutting down, doing the dishes, and heading to the airport!) ‘Later everyone!
May 28 (Thu): Work 9:30a – 5:30p
May 29 (Fri): Dental 8:50a; Work 10:30a – 5:30p
May 30 (Sat): Walk around potential campus; Dinner with Peter’s folks; Watch a movie on laptop
May 31 (Sun): S in town!; swing by aunt + uncle’s house to p/u items; dinner party at Peter’s mom’s place
WOW, I am BEHIND. So Thursday? I don’t recall. Work. Peter and I made food and ate dinner. Then probably went to bed EARLY.
Friday? I think we got up EARLY and I had a dental appointment (it was a cancellation by someone else, so I got to sneak in early). The good news? My teeth and gums look great, even though I was quite late in having my teeth cleaned. The bad news? The dentist didn’t know what my mouth sores are either, but threw out another herpes possibility and gave me a referral to the oral surgeon for what she and my doctor both feel are abnormal bumps on a particular part of my tongue (unrelated to the other sores). Meh. AND OMG I HAD SUCH SEVERE MOOD SWINGS ON THIS DAY. I mean it included a LOT of anger and frustration. I was blaming a particular someone in my heart for the suspected oral herpes, since I can think of someone in particular I kissed previously and then later learned that he got lip sores periodically. I was SO, SO, SO ANGRY, but it was also toward myself. My medical cousin calmed me back down, though. He said that if it was oral herpes, it’s often something picked up in childhood, and could have only just activated due to another virus stressing out my body or whatever. [Sneak preview: The mouth swab came back negative for herpes, although that particular test has a 30% chance of false negative.]
Saturday: Busy day! But what did we do? I remember the 2nd part of the day involved going out with Peter’s parents to the school I’m thinking of attending and walking all around the campus. It was fun. Then we had dinner with them and left in time to go back to Peter’s place and finally start a movie that we’ve been trying for a while to find time to watch — it got too late so we still haven’t finished the last 30 minutes of it. I think we turned it off at midnight (late).
Sunday: Met up with my old friend I met back in 8th grade! She and I were then friends through high school and have loosely stayed in touch since then. She’s great. She and her husband just happened to be in the area for something else!!! Had lunch with them. Then rushed to my uncle’s for several items I needed, such as enough thyroid medicine for this upcoming week. Then rushed to Peter’s mom’s house for a dinner party. It was nice. There were two twin 2 year olds that were like a little trouble team of whirlwind energy and destructive powers but were adorable. I did get fairly stressed a few times, particularly when one started touching a fragile-looking lamp with the straw end of a broom. And when I was expected to take the knife out of one of their little hands (“No! Mine mine mine!”). [I mean to take classes on how to interact with children– someday I really will.] Everyone I met was very nice. Then came back to Peter’s in time to go to sleep.
On Sunday, I also got a call from my primary care doctor (wow!) letting me know that my mouth swab came back negative for herpes. YAY but she reminded me again that the test has a 30% chance of false negative.
I just have a few things to share. Today was better. I’m going to finish this post and then vacuum, if nobody comes home first. I’m alone right now and it’s nice. No pressure. No eggshells.
I think my mom figured it out, though. She knows her brother pretty well and she has helped me to understand other people’s motivations a lot over the years. She thought about it all night (actually, she had insomnia last night because this was on her mind; I may have expressed my frustrations to her yesterday). She thinks a big chunk of why my uncle has amped up his vocalizing of his disapproval and his side comments toward me is because of my tardiness to work. He probably feels like he can’t fire me, but since January 1 of this year, I have been very bad at showing up to work at any decent hour. So obviously, with any other employee, he’d want to fire their asses. But he probably feels like he can’t fire me, so instead his frustration and disapproval is coming out at me in other ways, in personal life.
I don’t plan to be tardy now that we’re at the new location. I was freaking out since back then because of the impending move, but the move has happened now (P.S. “Joe” did nearly all of the packing. I did the two cabinets of office and shipping supplies, since that’s like my little “happy place” of office life, but basically nothing else. Even when it came time to pack up my own desk I just froze and didn’t do it). I have been showing up at the same time as my uncle since we moved, except for today, when I had therapy in the morning and then waited a little extra time so I could meet “Joe” at the train station and walk with him the rest of the way to work. (My uncle never went to the office before, but will be doing so now that it is in this new location.) (P.P.P.P.S. Today was “Joe’s” last day of helping out at the office.)
I do not plan to be late, but I know myself and some of my negative qualities. If I feel like I’m being micro-scoped about what time I leave the house, I’m going to get later and later because I’ll be afraid of showing my face / opposed to showing my face.
So what I need to do is take this into my own hands and basically leave the house without being noticed and show up like it’s just any other job, not an analyzed “thing”. You know what I mean? If it’s a big “thing”, I’m going to end up avoiding it like the plague. If it’s ignored, it won’t be a big deal to me either.
In therapy, we decided that I need to move out, because I *am* dependent on my aunt and uncle right now, and so I will be treated as a dependent.
If I moved out, I could even stay at that job, hypothetically. If I went back to full time work, I could even switch to their benefits. But then I’d have to switch doctors, therapist, psychiatrist. But I just don’t know.
I got excited at the thought of finding other people to rent a room from, if I can find someone who would allow me to get a DOG. Can you imagine? I know, I said I had to sell my pony before I let myself get a dog. But can you just imagine it? Me and a hypoallergenic dog? What if I found a place near an animal rescue site? What if I could work and live near animal rescue? What if I could work AT an animal rescue place? Ah dreams!!!
I know I’m in a pretty good mental state right now because I’m able to think of being alive for the next several months. That’s so much better than when I first arrived here and could only project ahead a few days tops. Now that I’ve pictured getting a dog and living independently, I don’t know if I can shove that back down. Imagine me having my very own refrigerator??? I don’t cook but I can put together sandwich ingredients. I can keep carrots and hummus in stock. Etc. I think I’d survive all right food-wise now (I didn’t feel I could do that when I first arrived, either).
So I know that being here has been very healthy for me. But now that I’m feeling so much better, I feel that itch for independence and adulthood again…
This time, I’ll get it right.
And OMG I want my own dog again. I miss my baby. I want to get the same breed as him because he was so much the perfect match for me. But my previous therapist was quite certain that I should get a wheaton terrier, because they are apparently the top-rated service animal for people on the autistic spectrum. Apparently, they are hypoallergenic, large enough to not be fragile (my favorite breed is very fragile), and are supposed to have a very good temperament. She said they are much more level-headed and calm than any of the -doodles (labradoodles, goldendoodles, etc), making them very good for people on the spectrum.
My baby couldn’t be a service dog because he is just as sensitive to loud sounds and sudden movements as me, and is also fragile enough that I have to worry for his safety each time we pass by another dog.
BUT I like a little dog. First, their poops are much easier to address. Second, I figure that if I am ever out on a mountain with my small dog and he were to get hurt, I could easily carry him back. Third, I’ve always wanted a lap dog. Fourth, I could easily crate a small dog for travel. (In fact, here, I would only be able to take a small dog with me in a crate on the train, unless a big dog was certified as a service animal.) [[ADDITION: Fifth, they eat less.]]
But, why would I get a dog if not for being certified as a service animal? So I don’t need to be concerned about that part — the travel part. Whatever dog I were to get would be a service animal.
Then there is another catch, which is that I do not want to support a breeder (except for the woman who bred my beloved dog. I know her and she’s not a mass breeder and not in it for the profit. But on principle, I don’t really want to support a breeder). I want to support rescue animals. But because of my allergies, I am rather stuck with pure-breed animals. I would have to find rescue groups for either of the two dog breeds I decide between, both of which, I think, are a bit more rare than a lot of other breeds. There are plenty on PetFinder, though. So it’s possible. | Okay, I am looking at all the dogs on PetFinder, now [i.e., I’m “in my happy place” and will be there a while] (although I must rehome my pony first anyway, which will be killer hard emotionally). ‘Later everyone.